I can't believe how long it has been since I have posted on here! Too long, that's for sure. Most important we had Jack's 6 month post op check in December and it looks great. Less fluid at the main cyst, a little pooling around other parts of his head, however Dr. Wisoff says that this is normal. Jack may always have some extra fluid in his head. For the MRI Jack had to be put under and he did fantastic!! The best yet. He woke up like nothing happened, sat up and wanted pretzels (his favorite food).
To the left is a picture of two scans. The one on the left is from June and the one on the right is from December. Quite a difference I think. Everything had a lot more room in there now too!
Another thing I'd like to mention is that Jack is on a gluten free diet. He has been for several months now for his attention. We actually think it has helped him a great deal! It also seems to have helped his reflux. He doesn't seem to cough at all anymore since he hasn't had any gluten. It has been a definite learning curve for all of us and quite expensive but worth it completely.
About a year ago I came across the North Star Foundation online. This foundation breeds and places companion or therapy dogs for children on the spectrum or some going through a critical disease or suffering a extreme loss. The dogs are typically Golden Retrievers but can also be Lab's or in the case of allergy sufferers they can be poodles or Golden/Labradoodles. We agreed that this would be a great addition to our family especially for Jack. Our golden retriever puppy was born on October 20th 2010!!!! We just had the opportunity to meet with him over the weekend. His name is Buddy. He is being raised in New Jersey by a wonderful couple. We can't wait until he comes to live with us, but first he needs to learn his manners. Here is a picture of Buddy!
Isn't he cute!!! We just love him!
I will try and update more. But we all know that probably won't happen. We are going to see a neurologist in NYU on 3/11. We are hoping to find a Dr. who can give us a little more insight into Jack and what we might expect in the years to come.
Here is a picture of Jack in Hilton Head Island, SC on our recent family vaction.
We are very proud of Jack and all of his accomplishments. It has been one very long and busy year.